Wheelchair Worries - Social Prescribing

I came across this video on YouTube about social prescribing. I'd never heard of social prescribing and thought you only went to the doctors for illness. But it reminded me that many years ago when I was younger and stupider (not much stupider, but I did bump into things more often), I thought "with all this free time, instead of just sitting in front of the telly, why don't I spend it getting in shape.

I'll look like Arnold Schwarzenegger in no time." So I went to the doctors to see if there was a limit to how much I could exercise now that my situation was different.
"Nope. Just take it easy, you haven't done any exercise in a long time. Oh and shelve your ambitions of looking like a former Mr Universe, you numpty." I can't be sure that's exactly how the conversation went, but I'm sure it's along those lines.

The doctor prescribed me exercise and handed me a prescription. Exercise on prescription allowed me to attend participating gyms for free. A new gym had just opened by me and was completely wheelchair accessible. As it turned out some of the exercise bikes had high backed seats, I would be able to cycle as much as I wanted. Unfortunately the bike was stationed directly in front of the telly, and my aspirations of becoming a mini Arnie hit a snag. At least my legs weren't completely immobile while I watched this television, but then I would get home and watch T.V while eating a pack of biscuits.

According to the video, every doctor's surgery has access to a social prescriber.
"Well I bet mine doesn't"
It did.

A social prescriber does exactly what it says on the tin, they prescribe social needs to people. I struggle first of all to get into social situations as it's difficult to get around. I am limited by what I can do and I've isolated myself because of my communication issues. Since I've been attending Andy's Man Club I've realised that my communication issues are largely in my head.

I made an appointment to see Michelle Cotterill, something that I recommend anybody in Stafford to do, and if you're not in Stafford then - as the video says - every doctor's surgery has access to it. She asked me what I wanted to get out of our appointment.

"I want to put myself in social situations again". 

I seemed to exist to the NHS when my brain tumour was fairly recent. They had got me into rehab at Cannock Chase Hospital, rehab at Moor Green, Headway brain injury charity, but as time has gone on offers had dried up. I explained "I find it particularly difficult in groups where there's atmospheric noise, especially large groups or a room where there are several conversations and I have to raise my voice to be heard." 

I liked the idea of using this blog as a reason to travel around. The best way to talk about accessibility is to experience it, but I didn't know how to do it without spending a fortune.

Disabled Persons Railcard

As I said previously, being in a wheelchair has its perks. One third off rail travel for twenty pounds for a year, or fifty-four pounds for three years sounds like a pretty good deal to me. Just make sure you have it with you when you travel. Describing where it is in your bedside table drawer isn't proof enough.You have to be able to prove you are in receipt of at least one of; Personal Independence Payments (PIP), Adult Disability Payment (ADP), Disability Living Allowance (DLA), Child Disability Payment (CDP), have a visual impairment, have a hearing impairment, have epilepsy, receive Attendance Allowance, Severe Disablement Allowance or Pension Age Disability Payment (PADP), receive War Pensioner's Mobility Supplement, receive War or Service Disablement Pension for 80% or more disability or, buy or lease a vehicle through the Motability scheme. If you need to be accompanied by somebody they will also receive the saving. There is always assistance on board if you require it, or you can book assistance. They can help you with a number of things, including:

• offering a helping hand to navigate the station
• help getting on or off the train
• meeting you from your train and taking you to your next train or the exit
• arranging a ramp on or off your train
• assistance relating to a non-visible impairment
• carrying your bag(s) – up to 3 items of luggage

You can't just fake a limp or show your friends Access Card with your thumb conveniently covering the photo ID though.

        For more information go to the website

My Access Card

Access Card
Oh, that reminds me, you should get an access card. This is so you can attend any participating venue and just show your card or quote your ID number when booking tickets online, and they will know what assistance you need. As you can see from the example - there are nine boxes at the bottom of the card. Three of the boxes are filled in signifying that I need level access, I have difficulty moving myself more than short distances 

Clockwise from top left:
Level access, Essential Companions, 
Distance, Standing and queuing,
Urgent Toilet Needs, Assistance Dogs,
Audible Information, Visual information,
Miscellaneous

and it would be significantly difficult to access services without support from another person. There are also six other disabilities you can declare. I had to get mine when booking tickets to see Roger Waters at The Utilita Arena in 2023. I needed it to prove I had a disability - again, a fake limp wasn't proof enough. They wanted proof I needed the chair for transport and didn't want to just be pushed around while sitting in a comfy seat. 

For more information go to the website

Bus, trams and trains pass

Okay, full transparency, this is only for travelling anywhere in the West Midlands. But it's cheaper than the railcard, in fact it's the best kind of cheap. Free! There is a restriction though - it's only free if you travel off peak (09:30 - 23:59), you're going to have to fork out £1.50 if you're an early riser. You can't just turn up to any bus though and demand free travel. You need to book on their website.

For more information go to the website

Travel for free on any bus at any time

Just because you are disabled, doesn't mean you can't travel around the country. In fact you can do it for free.

Have I mentioned perks before?

You can apply for a disabled bus pass from your local council. Disabled bus passes are free although you will have to prove you have the disability you're claiming for. You might be asked to provide a copy of your motability rating from your PIP letter. You may be asked for confirmation by a medical expert. Your council should have a page on their website listing the requirements - For example visit the Stafford Council 'What categories of disability qualify for a disabled pass?'.

The length of time you can hold a pass without having to re-apply depends on your reason for applying. Some people are awarded it on a temporary basis, others permanently meaning you won't have to re-apply for four to five years. All public local bus services in England must be DDA compliant which means they must be wheelchair accessible. The capacity for having wheelchair passengers depends on the model of the bus and the model of the wheelchair(s).

For more information on bus passes in the Stafford area go to the website

Wheelchair taxis

These are an absolute pain to arrange. If you can get out of your chair and sit in the car and your wheelchair will fold up, you will be able to use a taxi service. I would recommend Westside Taxis if you are in the Stafford area. They have an app which has a notes section. This allows you to book the taxi without human interference. For anywhere else there's Uber. Both apps are similar in that you can choose the car size I.E 6 seater, 8 seater, saloon etc and leave notes for the driver I.E "I am a wheelchair user but can travel in the passenger seat. There must be room in the boot for my collapsible wheelchair." Alternatively if you have to stay in your wheelchair then a taxi service isn't for you. I have only found one taxi service that had a wheelchair taxi but you couldn't book it in advance. You had to phone on the day you required it, to check its availability. Not ideal if you've got a hospital appointment in a few days.

Community Link

You might be starting to spot a pattern here, but this is available in Stafford. They will go further afield into mid-staffordshire, but if you need to attend a doctors appointment and public transport is difficult for you, try this service. They provide a wheelchair-friendly transport service for people with mobility difficulties. They're a friendly bunch and there are vehicles specially equipped to help passengers with mobility needs, and if you need a carer to accompany you, they can join you free of charge. There is a small fee for each trip but it's certainly cheaper than a taxi. You must be a member, the membership form is very simple and quick to fill out. Once you've completed that you can book a wheelchair taxi to your heart's content.

To become a member click here.

They are always on the lookout for volunteer drivers and passenger assistants. If this is something you're interested in then click here.

Airport assistance

You can read about my experience with airport assistance here. It was brilliant and completely took the stress out of catching a plane. Once we had checked in, we went to a desk and were given a small electronic device that would bleep when we needed to come back to the desk ready to board. We were free to do what we wanted until then. We went and got breakfast and we were able to go in the empty special assistance lounge rather than the packed Weatherspoon's. When it was close to departure time, our electronic device beeped, and we were taken to the gate. 

There was one problem here. The transport wasn't wheelchair friendly. People who had mobility issues got a lift. We walked behind, with my Dad pushing the wheelchair in the slip stream of the transport. 

We were delivered to the gate, passed through security and were then taken to what looked like a mobile storage unit. A scissor lift lifted me up and I and the other special assistance customers had a small ride to the plane. The mobile storage unit got as close to the plane as possible so I could just wheel aboard.

For more information go to the CAA (Civil Aviation Authority) website.

Bond Hotel, Blackpool

Hotel's sometimes declare a room as disable friendly to fulfill a legal responsibility, but the room is in no way appropriate. Take my experience in France for example. It was a lovely hotel, but it had clearly been designed for able bodied people. They thought that all they needed to do was put a couple of grab rails in and remove the shower screen to make it disabled friendly.

The Bond Hotel has been designed with the sole intention of making most rooms fully accessible. Most rooms have an en-suite wet room, widened doors, grab rails, lots of floor space, hoists, a wide range of mobility equipment available on request (and free of charge) and a 24-hour manned emergency call system. Their rooms are spread across three with a choice of single.

Their is a restaurant, bar and cabaret area inside the hotel - all fully accessible. They'll even help arrange your travel and pick you up from your house. As the hotel is in Blackpool there is plenty to see and do and pretty much all public transport is wheelchair accessible.

For more information go to the website

RADAR key
I hate having to a use a toilet in a publicly used bathroom. Men are... sorry men can be, disgusting creatures. Having to sit on a toilet seat that men have tried to miss while aiming for the large hole in the middle, fills me with dread. All over the UK there are 10,000+ disabled toilets behind a locked door. You can only get an officially authorised RADAR key from here. The key is only available to National Disability and Carers Card holders which you can purchase from the site. This will to skip queues to use facilities that may not be clean or adapted to your needs. Some accessible countryside gates require a RADAR Key for access. They often feature an "H" frame with a rectangular enclosure for use by mobility scooters and wheelchair users.

For more information go to the website.

@fatpigeonsbook

@fatpigeonsbook

Wheelchair Worries - Andy's Man Club - It's Okay To Talk

Back in November, I thought, it's been quite a long time since my tumour, I should probably show my face and remind people I'm still alive. My insecurities and desire to avoid people, had just been a way to avoid life. But getting back into life isn't so easy after a long period of dodging it. I'm forty-two now, so I think that's mission accomplished, time for this old dog to learn some old (but new to him) tricks. Fortuitously, I received a text from my GP surgery. Their annual Community Mental Health Event was being held at Stafford Rangers Social Club. I'd been there a few times and knew it had excellent access. My main worry had already been dealt with, I knew it had wide corridors, smooth floors, a big function room and everything was on one floor.

As I had only been thinking about doing something like this for many minutes, had I manifested it? Or was it just pure coincidence?
Probably the latter.
If I were you, I wouldn't cancel those tickets for Paul McKenna's next tour. I think there's more to manifesting than just having a bit of a think.

I stuck to the idea of attending rather than making up some reason why I should take the easy way out and not go. I booked a taxi and then cancelled it immediately as my Dad said he could take me. We got to Stafford Rangers and Dad got out to get the chair and assumed I would expect him to push me around in there.
"No thanks, I'd rather go in on my own". I said.
I'd got my big boy pants on today! 💪

I wheeled myself in, self conscious of the fact that other people in wheelchairs seem to just glide along, giving the wheels a little push every few metres. I however, constantly correct my direction and stop the start like an old spluttering car.

Two women at the door greeted me and held the door open, told me to go along the corridor and turn right at the end. There was no issue of access. As I remembered, the floors were flat and smooth and the corridors were wide. I could just glide to the end of the corridor.

Could... but didn't.

Another woman greeted me at the door and told me there was a bar with refreshments to the left. I thanked her and went forth...before doubling back and asking her what do I do. I thought this was going to be a room of people all sitting in rows watching a talk/presentation or two. It wasn't. About fifteen charities had tables around the room with one or two people sat at them. You would talk to a charity that took your interest to get some further information.

I spoke to a few charities, but they wanted me to go for an interview and then wait to see if I'd been selected. Like I'd just applied to college. I didn't like how formal this was, I didn't like that I had to audition and if they deemed me worthy of help, I could attend. Katherine House Hospice were here as well. It was one of the first tables I encountered on my circuit. I was reading the information on the table, just being nosey, when I was approached.
"Can I help you?"
I knew what table I was at and fortunately, had no need for it. I didn't tell him that straight away though and had a chat, I didn't feel comfortable telling him "no thanks" . I thought Katherine House was a small charity that offered end of life care to a select few. It's actually a large charity that has two-hundred employees and six-hundred volunteers. They have a therapy and wellbeing clinic, a lymphoedema clinic, end of life care. It costs them about four million pounds a year, a lot of which is from donations. They rent space in many shops around Staffordshire where you can donate furniture. It's a big machine and a very worthwhile cause. Katherine House Hospice.

One of the first tables I came across was Andy's Man Club. The design of their station caught my attention. It was black with a hand in white making the ok sign. I stopped and a guy came out to talk to me. They are a group of men that meet up every Monday at Stafford Rugby Club for a couple of hours and gives you the chance to chat to a group of people who are all there for the same reason - to talk. I asked how many people go and he said it varies week by week but it could be as many as sixty. Whoah, that's quite a lot I thought. Straight away I was thinking about what it would be like to enter a room where sixty people all turn and look as I slowly wheel into the room, my wheelchair stopping and starting, constantly changing direction. My imagination was was running riot. I started trying to make my excuses for not going.
"I don't think people will be able to understand me, I said"
"We're chatting now and I have no difficulty in understanding you," he replied
"I don't know if I feel comfortable talking in front of that many people."
"There is no obligation to talk, you can just listen and socialise in the breaks. Some weeks I don't say anything, but last week I had a lot to get off my chest and you couldn't shut me up."

So he was a volunteer who attends these meetings himself? He handed me a flyer and I said I'd go. 

And I intended too.
And I did.

The first rule of fight club is you don't talk about fight club.
Oops sorry. 

Same first rule, different club.

The first rule of Andy's Man Club is you don't talk about Andy's Man Club.

I shocked us both and kept to my word. Stafford Rugby Club kindly allow us the use of their facilities. There is loads of parking. There's even lots of disabled spaces which a lot of the time are left free, although there is rugby practice as well and obviously all the disabled spaces get used first. There's always people on the door to open the door for me on arrival, but I have to ask somebody to let me out as the doors aren't automatic. We meet on the first floor, but there is a lift for us mobility challenged folk.

The first time I went the guy I met at the Mental Health Event was there as well, so I wasn't in a room full of strangers. Which I am very appreciative of because I can guarantee I wouldn't have gone again the following weeks otherwise. About fifty people attend. We all sit in a big group, introduce ourselves and then get split up into smaller groups with at least one (but usually two or three) volunteers to head up the group. Oh and gallons of tea, biscuits and one of the members of our group brings a sack of pastries.

I've been going for a few months now and take advantage of the chance to talk to a captive audience. It's right what people say, it really does help to talk. We are always much harder on ourselves when left with just our own imagination. Talking to others gives me the true perspective of other people's opinion of me - which is always different to my own negative view. It's taken me a while to realise that I just try to deflect by attempting to be funny and never really speaking seriously. Andy's Man Club is a great start to my week, there's always somebody who can offer you advice, or quite often they don't offer any thoughts, you just feel better having spoken your thoughts to other people, rather than just thinking them. 

I enjoy going, it's a change of scenery and a good chance to socialise and get things off my chest. I don't think I'm too good at the socialising in breaks. Everybody's talking in a big echoey hall, which makes it hard to be heard.

I'll continue going and work on that though.

Andy's Man Club

@fatpigeonsbook

@fatpigeonsbook

Wheelchair Worries - My (in)Accessible Ramp

If you've read my book, you will know that I wasn't particularly complimentary following my initial interactions with the Social Services.

Alice phoned the Social Services and was told they wouldn’t look at doing the conversion because they needed to assess me in the already converted environment to see what needs are required to be catered for.

There was a major problem with this ridiculous rule. The Haywood couldn’t discharge me until they were happy I was going back to an environment that catered for my needs.

I simply don’t know what happened here, maybe there were some crossed wires.

The problem as far as I’m concerned was Social Services, though when I’ve used them since they’ve been great. Admittedly, they’ve only project-managed modifications, but things have gone incredibly smoothly. I think whoever was running things at this time is to blame.

Source: Brain Tumours, John Bonham and Fat Pigeons

Well, this is one of those occasions where they were very helpful. They arranged for the front part of my conversion (which had remained as a garage) to be converted into a utility room/porch/entrance thingy. This would have a raised floor so it would be on the same level as the bedroom. Originally, I used a portable metal ramp to get up to the bedroom from the garage. A permanent ramp would be built and fitted allowing me to get to the front door.

It looks great and it doesn't look out of place, it looks like the ramp has been here as long as the house and is an original fixture. I was very happy with it.

A few weeks later I was walking up the ramp from my Dad's car as I do most evenings, when I took a mis-step and reached for the bannister at the side to steady me. The fixture moved. It supported me, but I hadn't put much weight on it - between my legs and Dad's support, I didn't overly rely on it. On investigation it was discovered that the ramp wasn't attached to the drive, it was held in place simply because it was clipped in to the rest of the structure.

I informed the Social Services and the company in question returned to screw the ramp into the tarmac. I didn't understand how a company who specialise in installing disability ramps failed to remember this key component.

Over the next few years I had got used to buying cartons of salt to pour on the ramp when the weather was cold. The ramp is lackered, making it like a piece of shiny plastic, it was impossible

to scale on my own as the wheels would spin. When I was being pushed, the person pushing couldn't get any grip. It started to dawn on me that this precaution wasn't needed when using my old ramp - which is at my parents house now. It's metal but their are tracks and rivets meaning that it's not slippy. I was starting to realise that although my ramp looked great it had the functionality of an ice rink.

I then noticed another short coming of my ramp, I can't self propel up it. My wheelchair pulls involountary wheelies. I have to reverse up the ramp as this allows my weight - which is predominately resting against the backrest - to be at the front. This isn't a fault of the ramp, it's as long as the drive allows and the incline is what it is. I have a large bulky wheelchair with arms to stop me flopping out. I have a friend with a lighter, sportier chair and he gets up it without a problem, he can get on the ramp already doing a good speed so he has momentum. I can't do this, I have to go bit by bit, I push with my feet whilst turning the wheels.

What is somebody's fault is putting a pointless bit of metal at the foot of the ramp. It is riveted though, so there is a bit of grip... in the dry. When it rains this ramp is a hazard to anyone - disabled or not. Fortunately the bannisters either side have rivets, so I can grab these and pull myself up.

Well, now it's screwed down I can.

@fatpigeonsbook

@fatpigeonsbook

Wheelchair Worries *Puissalicon Edition - Another seven hours in the car

 

photo courtesy of
Brit Hotel privilège

After one of the most comfortable night's sleep I've had - the beds are extremely comfortable. And a pleasant breakfast, it was time to get back on the road again. It was just after 09:00am, we knew it was going to be a long drive, but we were un-aware at this point just how long it would take. Although it wasn't lost on me that the DS could just stop working at any moment, it has form for that.

Pretty soon we reached the first péage (pronounced pay-arge). Certain motorways in France are toll roads. Thinking about it this is probably why the roads are so empty, not because "France is big" as I idiotically said in a previous post.

The first thing I noticed was how big France was. I know that's quite an obvious comment. And how could I notice that just staring out of the window of a car? Well, it was 15:30 and the motorway was fairly empty. As the journey went on there were times when we couldn't see another car

Source: https://www.wheelchairworries.com/2024/10/wheelchair-worries-puissalicon-edition_20.html

The ticket machine was on the driver's side, but as we were in a British right hand drive car, it was up to me to reach out and grab the ticket. Something that we would get quite used to whilst driving to and from the villa. As this was the first occasion Dad lined up the car so that he was closer to the machine, which meant I was further away. And as weren't in a left hand drive car, it was upto the passenger - me. I took my seatbelt off, Dad pushed me towards the window and - fully expecting my dodgy grip to drop the ticket - I did it!

First stop, the toilets. I already knew there wasn't going to be a toilet seat in this tatty looking public bathroom - which I was quite glad about - providing there was a grab rail.

There was a disabled signpost pointing at the loos, so I was hopeful. Success! I got in and there was indeed a grab rail by the toilet. The room was quite large and in the far corner stood a solitary toilet. The room was in fairly good order. I still wouldn't like to touch anything, but I wouldn't have to rush to a Hospital to get a tetanus shot if I did. Maybe they've got a point with this no toilet seat idea...The grab rail was on the right side. My tremors are far worse on the right side and if I hold anything in my right hand I probably will shake. I gripped the grab rail very tight and my hand was trying desperately to waggle itself free. I wouldn't let go so my arm and my body started to shake. I looked across to the empty wall on the opposite side. There was a five metre space between the opposite wall and the front of this toilet bowl. Couldn't another toilet be put here? The grab rail would be on the left then, so somebody with issues on one side could use the other toilet?

I got back in the car, introduced Dad to the world of podcasting by putting on the The Rest Is Entertainment podcast and settled in for a long journey. Did you know that France has the tallest bridge in the world? Me neither! We didn't seem to be too high up, so I've double checked on Wikipedia.

As of October 2023, it is the tallest bridge in the world, having a structural height of 343 metres

Source:https://en.wikipedia.org/wiki/Millau_Viaduct

I glimpsed in the wing mirror to the pair of hangers on who'd latched onto us at Le Shuttle and I saw just a pair of feet on the dashboard. French drivers might have been alarmed to see the feet of the driver...

As we got over the bridge the view changed immediately. We seemed to have been transported into a western. The world was suddenly brownish, orange mountains. I was expecting to see bandits in between the rocks pointing rifles at us with questionable moustaches.

Along with the change of scenery, we now had the sunshine and not a cloud in the sky. The journey stayed like this for the remainder of the journey, gone were the motorways. It was single carriage roads all the way, but barely another car shared the roads with us. We got a phone call from the hangers on in the car behind.
"Are your ears popping?"
"I think so", I replied "I keep going deaf, and then I swallow and I can hear again".

Dad checked our elevation on a handy little app on the DS dashboard - this is probably the only time we'll need it, but DS have clearly got their priorities right. The car doesn't always start! But it gets the important things right. We were 3000km high, and it would continue rising to 3400km. It dropped quite significantly after that. After about another hour and a half we arrived.

I Writed A Book...

Back in 2007 I had a brain tumour, it was a Hemangioblastoma. It's a rare non cancerous tumour that occurs in about 2 to 3 people per million per year. It was supposed to be a fairly simple operation. Hemangioblastoma's are slow growing, and the tumour was 'away from all the major clockwork'.

Unfortunately MRI scans had failed to portray how “entangled” the tumour had become in hundreds of blood vessels.

Any of the blood vessels could be an essential supply to the brain stem. Each one the surgeon cut was likely to starve a part of the brain of oxygen, so he knew he was going to cause damage, but it was near-impossible to predict to what extent. I’m now forty one, I was twenty four when I had my brain tumour removed. I'm in a wheelchair, have Ataxia and have double vision and speech problems.

I've written a book; Brain Tumours, John Bonham and Fat Pigeons. It’s a cautionary tale, but also one of hope. I feel very fortunate to be able to share my story, and who knows it may help somebody going through similar times. It may help somebody identify the problem instead of making the same mistakes I did.

Plus, you want to know why fat pigeons are mentioned, don't you...

I wanted to make a hardback version so I could have lots of pictures in, but it would cost a lot. So I put them on social media. You can follow me in Instagram and Facebook
www.instagram.com/fatpigeonsbook
www.facebook.com/fatpigeonsbook
www.youtube.com/@fatpigeonsbook

There is an article on the Brain Tumour Research Website - braintumourresearch.org

An article in The Sentinel

An article on BBC News

Several times throughout the book I refer to funny stories from my younger pre brain tumour days. This is a short video I made with my friend Helen Lawson narrating it.